Saturday, August 10, 2013

Theories of Disabilities

THEORIES OF DISABILITY

Concise Oxford Dictionary (2010) defines a theory as supposition or a system of ideas intended to explain something, especially one based on general principles independent of the thing to be explained.
Theories of disability are the ideas that try to speculate on disability; to analyze different systems on which the term disability can be easily perceived and comprehended in general terms.

Pity Charity Theory
In this theory of disability there is a practice of Christians who take up active roles in supporting people who are less fortune than themselves. It is a diaconal work which was conducted by the apostles of Jesus to help the needy people. It was a part of good of the gospel. The New Testament documents many stories about Christ and his disciples healing the sick as the removal of sin. Stiker (1999) indicates that these stories are predominantly in the gospel of Matthew. He gives the examples of Christ healing the blind, cripples, dead, fool, misfits, lepers and epileptics.

According to the Bible, every human being is created in God’s likeness regardless of their physical or mental capacities. The love that God has for every human being also applies to people with different kind of disabilities. God’s wish to save every human being and the whole creation from evil is a wish he also has for those who live with disabilities. That means that God’s command that we love our neighbour as ourselves (Lev 19:18) also includes those who have disabilities.
 According to the same chapter, God commands his people not to curse the deaf or put a stumbling block before the blind. The Old Testament tells its readers to treat people with disabilities justly and fairly. So Moses tells people that to mislead a blind man on a road will lead to a curse (Deut 27:18).

There is one well-known scripture passage that from our modern point of view may look discriminating. That is the command in Leviticus 21 that no one who has a blemish may be a priest. We can understand this passage by comparing it to Malachi 1:7 where the prophet complains that the priests are offering polluted food on the altar.
The idea is that what is offered to the Lord should not be something that would be thrown away anyway. What is offered to the Lord should be something valuable, so that the one who is offering makes a real sacrifice. Similarly, a family which is asked to offer one son as a priest should not be allowed to offer a son who can not help them on the farm. The son offered for priesthood should be without blemish, like the lamb killed at Easter (Ex 12:5-6). This rule for the temple cults on earth. But when Ezekiel gives us his prophecy about the future temple, this rule is omitted, and that is not a coincidence. That rule is not needed in the kingdom to come.

Sometimes this passage has been interpreted as if the Bible regards people with disabilities as unworthy and whose injuries or sicknesses are a punishment for sin. We can see this interpretation behind the disciples’ questions to Jesus when they meet the man who was blind from birth: (John 9:2) "Who sinned, this man or his parents that he was born blind?" Jesus’ answer is clear: "It was not that this man sinned or his parents." This answer should have prevented any interpretation that the Bible teaches us that disability is a punishment from God for sins. Yet we meet such interpretations among Christians all over the world.

Medical Theory of Disability
This is the 20th century theory of disability under the age of MEN OF SCIENCE which govern and colonize the bodies (and minds) of people with ability differences. The theory deals mainly with intellectual disability (cognitive disability). The focus of study has been the measurement of intelligent through the use of IQ knowledge, and nowadays is the function and structure of human brain. The medical theory of disability links disability to illness and as such the requirement to seek a cure.

Wills (2000) argues that disability became socially understood as illness around 1500s when Leprosarium became empty. Under medical theory of disability, the authorities and the society in general decided to set buildings to place people with ability differences. This category of people with ability differences, and sometimes were termed as unfit to society included the poor, unemployed, single mothers, mad, feebleminded and other types of disabilities.


Criticism to the medical disability theory
Oliver (1990:4) is quoted criticizing medical theory of disability as follows;
The problem is that the doctors are socialized by their own training into believing that they are experts and accorded that role by society. When confronted with the social problems of disability as experts, they cannot admit that they do not know what to do. Consequently they feel threatened and fall back on their medical skills and training inappropriate as they are and impose them on disabled people. They, then appear bewildered when disabled people criticize or reject this imposed treatments (Oliver, 1990:4)”.

From the statement of Oliver above, one can grasp the weakness of this theory in that; even the disability types which are non-medical oriented are generalized and classified into the group of medication process which later bring forth the dangerous conditions to the patients.

Social theory of disability
Proponents: the theory was pioneered by Stephene Taylor, Michael Oliver, Tom Shakespeare, Scott Danforth, Jenny Morris, Rosemarie Garland Thomso, Dan Goodley, Christopher Newell, Mark Rapley and Simi Linton.
This theory had the following tenets;

Firstly, the theory argues that it is the society that disables a person, not their individual differences.

Secondly, the theory refers to the impairment as the individual ability differences of bodies; that is, all people cannot bear the same body with the same abilities. For example, the way we build buildings disables people in wheel chairs and visually impaired including blind people.
Thirdly, disability is not inability that means, any person can do anything provided there is conducive environment to do so.

Fourthly, people become disabled because our social system mistreats them, putting before them a lot of barriers-indeed exploit them and finally label them as disabled.

Fifthly, every person is, in one way or another has disability, whether hidden or open, congenital or acquired, and it can be of any range (profound, severe, or moderate).

The theory is drawn from the work of post structuralists, social construction, feminist and Marxist frameworks to inform the deconstructive work undertaken in examining disability construct.
These were the précised words of Stiker narrating how disability concept is enumerated from the general systems of the culture of our societies. Disability is cultural constructed phenomenon.

“There is no history of thought outside the history of systems of thought.
There is no speech outside systems of languages.
There is no spirituality outside received spiritual frameworks.
There is no disability, no disabled, outside precise social and cultural constructions;
There is no attitude toward disability outside a series of societal references and constructions (Stiker, 2000: 14)”.

The social construction of disability is done in various ways and finally accepted in society.
Massie (2006) explains that, the accepted ways of thinking, reacting and doing business become firmly embedded in society and can be remarkably resistant to change. Negative attitudes can become institutionalized. We often see the impact of negative attitudes in how one person treats another. But negative attitudes are also the foundation stone on which disabling policies and services are built. Harmful attitudes that limit and restrict are institutionalised in policies and services and so maintain the historic disadvantage that disabled people have faced.
A major reason proposed for negative social attitudes, resulting in the denial of basic values and rights/conditions, is the way disability is portrayed and interpreted in society.

Biklen (1987) and Taylor et al (1993) identified social construction of disability as a barrier to social inclusion. At community level negative attitudes can become structured into social patterns of segregation and discrimination. The theory of social construction attempts to explain the process by which knowledge is created and assumed as reality (Douglas, 1970 cited by Devine, 1997). The theory asserts that meanings are created, learned and shared by people and then reflected in their behaviour, attitudes and language (Devine 1997 citing Berger et al, 1966).

Particular social constructions of disability portray people with disabilities as “other” and not as an integral part of the ‘normal’ world. Negative attitudes and behaviours develop from this ‘worldview’. In the last two decades disability rights activists and academics have highlighted cultural and environmental factors that marginalise people with disabilities, denying them basic values and the accompanying basic rights/conditions.

Oliver (1990) sees this social model of disability as among many triggers that places a person’s impairment in the context of social and environmental factors, which create disabling barriers to participation. This social model of disability approach suggests that the root of disability lies in a failure of the environment to allow someone to function to his/her full capacity as much as in any functional impairment that the person may have.
Crow (1996) furthermore suggests that, highlighting the marginalisation of people with disabilities through cultural and environmental factors does not mean that impairment is denied. Impairment is an objective concept and means that aspects of a person’s body do not function or function with difficulty

However, when impairment is taken a step further to imply that a person’s body, the person and the person’s worth is inferior to that of others, then there is an interpretation that is socially created and is therefore not fixed or inevitable (Crow, 1996). Crow argues that one can think of impairment in three, related, ways. First there is the objective concept of impairment. Second, there is the individual interpretation of the subjective experience of impairment. Finally, there is the impact of the wider social context upon impairment, in which misrepresentation, exclusion and discrimination combine to disable people with impairments. It is this third aspect of impairment which is not inevitable. Such socially constructed interpretations and meanings are not fixed or inevitable and can therefore be replaced with alternative interpretations (Crow, 1996).
                                              Advocacy Theory
Proponents: Stephene Taylor, Dan Goodbley, Marie Knox, Trevor Parmentor, Susie Beart, Chritine Bigby, Pats Frauley and Heather Forsythe. Self- Advocacy movement stands for sel-determination, empowerment and equality for people who are labeled with mental retardation (nowadays popularly known as cognitive disability).The slogan for Self- Advocacy is “Nothing about us with us”. They call into question the authority of others who control and limit their lives and the opportunities which they are exposed to.

The theory deals with people having intellectual impairment and holds the notion that their lives are controlled by others; and services and treatments given to them do not have feedback. Therefore, there must be other people to represent the intellectual impaired people on decisive matters. This group of movement includes the parents and other immediate people and agencies that seem to volunteer in helping these people with intellectual impairment.

Turnbull and Turnbull (2001:56) have defined Self-advocacy as self-determination for individuals with significant disabilities as the means for experiencing a quality of life consistent with one’s own values, preferences, strengths, and needs. They point out that the challenge is to develop a self-determined vision of quality of life, actualize the vision, and make adjustments and enhancements over the lifespan. Self-advocacy, goal setting and attainment, decision making, risk-taking, and self-awareness are among the behaviors reflected in curricula and instructional interventions designed to teach self-determination to students with disabilities.
  
Disability Right Theory
Adam (2007: 384) discusses that the disability right theory came as the results of what Aristotle called a natural slaves. Natural slaves, according to Aristotle, are people who are born with persistent impairments that prevent them from reasoning like “normal” human beings. Specifically, he thinks they lack the part of the soul that engages in reasoning, though they possess the part that responds to reason.

Aristotle seems to mean that a natural slave is a person with a moderate or severe mental disability whose condition renders him dependent on the direction and guidance of others. These people deserve to be slaves by their nature, according to Aristotle, so justice requires them to be enslaved. And since they are able to perform ordinary tasks that contribute to the good of others, Aristotle thinks the relationship between natural slaves and masters is not only just, but mutually beneficial as well.

In addition to being inconsistent and empirically inadequate, Aristotle’s justification of natural slavery is quite demeaning. Commentators on these passages are usually careful to signal their abhorrence:
Arguments against “Natural Slave of Aristotle”

“That [Aristotle] defended an intuition that is inherently debasing and often brutal is a deeply disturbing feature of his political thought, and our repugnance increases when we learn that his attempt to justify this practice played a significant role in its perpetuation. (Kraut 1997: 277)”.
“Aristotle’s views on slavery are an embarrassment to those who otherwise hold his philosophy in high regard. (Schofield 2005: 91)”.

“What sensible person now believes in . . . natural slaves? (Reeve 1998: lx)”.

Negative Selectionism
Negative selectionism is the view that, as a matter of social policy, there is good reason not to bring in to existence people with disabilities.
While political contractualism figures prominently in courses on moral and political theory, bioethics courses often involve discussions about whether we should choose to avoid having children with disabilities.
Currently, there is a practice of such negative selection by conceiving at a later time in order to have a child without a disability implanting an embryo with little or no disposition for disability, or aborting an embryo or fetus that is likely to be disabled.

Debates about negative selectionism usually focus on its implications. Some people think negative selection for disability is justified because it reduces overall suffering in the world and improves the opportunities of the children who are born. Opponents of selection against the disabled, however, argue that such actions diminish human diversity, which is either bad in itself or bad because it denies some people rewarding interactions with the disabled. Opponents also claim that selection against the disabled reduces the number of disabled people, and so might decrease the support they receive from society. In addition to concerns about its implications, disability rights advocates vigorously object to negative selectionism because of its expressive character.

References
Berger, P.L., Luckmann, T. (1966) The social construction of reality:
A treatise in the sociology of knowledge, Garden City, NJ: Doubleday & Co.

Biklen, D. (1987) The culture of policy: Disability images and their analogues in public policy. Public Policy Journal, 15 (3), 515-535.

Crow, L. (1996) Including all of our lives: renewing the social model of disability in Exploring the Divide (C Barnes & G Mercer, Eds.) Leeds: the Disability Press pp 55-72

Devine, M.A. (1997) Inclusive leisure services and research: A consideration of the use of social construction theory Journal of Leisurability 24 (2), pp 1-9 (accessed on 07/02/2013 at

Douglas, J.D. (1970) Understanding everyday life In J.D. Douglas (Ed.), Understanding everyday life: Towards the reconstruction of sociological knowledge (pp 3-43), Chicago: Aldine.

Massie, B. (2006) ‘Participation – have we got an Attitude Problem?’ Paper presented in the NDA 5th Annual Conference Civic, Cultural and Social Participation: Building an Inclusive Society. Dublin, Ireland, 16th November.

Oliver, M. (1990) The Politics of Disablement, Basingstoke: Macmillan.
Oliver, M. (1990). The Individual and Social Models of Disability. PhD reader in Disability Studies. Thames Polytechnic.

Reeve, C. D. C. (1998). “Introduction: Rulers and Subjects,” in Aristotle 1998.
Schofield, Malcolm. (2005). “Ideology and Philosophy in Aristotle’s Theory of Slavery,” in
Aristotle’s Politics: Critical Essays, ed. Richard Kraut and Steven Skultety (Lanham, Md.:
Rowman & Littlefield Publishers).
Stiker, J. H. (2000). A History of Disability. University of Michigan Press. USA.

Taylor, S.J., Bogdan, R. (1993) Promises made and promises to be broken In P. Wehman (Ed.), The ADA mandate for social change (pp 255-268) Baltimore: Paul H Brookes.
Turnbull, A. P., & Turnbull, H. R. (2001). Self- determination for individuals with significant Cognitive disabilities and their families. Journal of the Association for Persons with Severe Handicap, 26 (1), 56-62.

Wills, D. (2000). Parent Education Workshop. Independent Advocacy, Adelaide.

Prepared by
                 Sokime Philemon
Contact:    sokime2012@gmail.com

The other World of Disability

THE GREAT SECRETS OF DISABILITY
Disability is not a disease, it is just like human diversity, and it differentiates one person from the other. Furthermore, disability keeps an individual with disability or the family having a member with disability speculating beyond the normal thinking body. Through disability we come to see true friends and enemies, tolerant and intolerant bodies, stoics and easy personalities; we get informed about how people feel about disability. It is real that, through disability, human being is assessed and screened about his/her personality. Through it, a long line demarcation of perspectives is clearly drawn. In turn, individuals or families having members with disabilities must have extraordinarily life styles for the purpose of copping the emerging complexities within the diversified community. In most cases, those great thoughts enrich the entire society by being informed about the novel issues that are latent to human soul and his nature. Hence, disability is the source of philosophy and logical means through which people get knowledged about the nature of human being.
“To me, disability is the hidden golden opportunity of the other side of the life in the Created Socio-Cultural Universe, in which the Institute of Discovering the Innate Human Sociological and Anthropological Vantages is of great deal”.
Sokime Philemon on the Contemporary Disability Affairs -2013